November 4, 2002
Nolan turns 9 and we celebrate
his birthday at Disneyland
November 13, 2002
Due to recurring headaches Nolan undergoes some brain scans and is given
the grim prognosis of brainstem glioma with no known cure.
November 25, 2002
Nolan begins his six-week course of radiation to slow disease progression.
December 2002
Radiation damages facial nerves, causing partial paralysis. Temodor is introduced
in hopes it will also slow tumor growth
January 31, 2003
Radiation and first round of chemo complete. Nolan's headaches return.
February 2003
Second MRI shows tumor growth. Nolan must increase his dose of steroids.
Parents learn of Dr. Burzynski's antineoplaston treatments and make decision
to take Nolan to Texas
March 2003
Nolan has lost sensation in his left hand and leg. Third MRI on the
22nd shows further growth of tumor and increased hydrocephalus. Mom and Nolan fly to Texas on the 23rd. Nolan
has surgery to place central-line catheter and the antineoplaston treatments are started on the 26th.
April 2003
Nolan remains in Houston for three weeks and returns home on the 17th
to continue treatment. His medicines are infused around the clock.
May 2003
An MRI on the 20th revealed unchanged tumor and a slight decrease in hydrocephalus.
Nolan is in good spirits and all his lab reports return within normal ranges, but he is having trouble walking due to
hip/leg pain (a side-effect of the steroid he is taking) and severe dizzyness.
June 2003
Nolan begins taking a vitamin/mineral regime in conjunction with the
antineoplastons in hopes of relieving the dizzyness and hip pain, and also to boost effectiveness of the infused medicines.
July 2003
Nolan's MRI on the 15th of July showed a 13% increase in tumor. The Burzynski team advise
an increase in the dose of antineoplastons.
August 6, 2003
Nolan suffers several seizures and is hospitalized for two days. His dilantin was discontinued
after five days and his decadron increased. He resumed the antineoplaston treatments at a lower dose and is being carefully
monitored.
August 24, 2003
Nolan is semi-conscious in the morning of Saturday, Aug. 23 and taken to the emergency room in
Walnut Creek. Late in the afternoon he is rushed via ambulance to the pediatric intensive care unit at Santa Clara,
where he is stabilized but remains unconscious. At 10:00 a.m. on Sunday morning, he is no longer able to breathe on
his own and after the arrival of his family around noon, he is ushered on wings of angels into the glory of heaven.
Sweet Nolan, we love and miss you dearly!!
"God
will wipe away every tear from their eyes;
their will be no more death, nor sorrow, nor crying.
There shall be no more pain, for the former
things
have passed away."
~ Revelations 21:4
